TY - BOOK AU - Mokkink, L. B. AU - van der Lee, J. H. AU - Grootenhuis, M. A. AU - Offringa, M. AU - van Praag, B. M. S. AU - Heymans, H. S. A. PY - 2006 DA - 2006// TI - Omvang en gevolgen van chronische aandoeningen bij kinderen [Extent and Consequences of Chronic Conditions in Children] PB - Emma Children's Hospital Academic Medical Center CY - Amsterdam, The Netherlands ID - Mokkink2006 ER - TY - JOUR AU - Perrin, J. M. AU - Bloom, S. R. AU - Gortmaker, S. L. PY - 2007 DA - 2007// TI - The increase of childhood chronic conditions in the United States JO - JAMA VL - 297 UR - https://doi.org/10.1001/jama.297.24.2755 DO - 10.1001/jama.297.24.2755 ID - Perrin2007 ER - TY - JOUR AU - Hallum, A. PY - 1995 DA - 1995// TI - Disability and the transition to adulthood: issues for the disabled child, the family, and the pediatrician JO - Curr Probl Pediatr VL - 25 ID - Hallum1995 ER - TY - JOUR AU - Stam, H. AU - Hartman, E. E. AU - Deurloo, J. A. AU - Groothoff, J. AU - Grootenhuis, M. A. PY - 2006 DA - 2006// TI - Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood JO - J Adolesc Health VL - 39 UR - https://doi.org/10.1016/j.jadohealth.2005.03.011 DO - 10.1016/j.jadohealth.2005.03.011 ID - Stam2006 ER - TY - JOUR AU - Law, M. AU - King, G. AU - King, S. AU - Kertoy, M. AU - Hurley, P. AU - Rosenbaum, P. AU - Young, N. AU - Hanna, S. PY - 2006 DA - 2006// TI - Patterns of participation in recreational and leisure activities among children with complex physical disabilities JO - Dev Med Child Neurol VL - 48 UR - https://doi.org/10.1017/S0012162206000740 DO - 10.1017/S0012162206000740 ID - Law2006 ER - TY - JOUR AU - Hartman, A. AU - DePoy, E. AU - Francis, C. AU - Gilmer, D. PY - 2000 DA - 2000// TI - Adolescents with special health care needs in transition: three life histories JO - Soc Work Health Care VL - 31 UR - https://doi.org/10.1300/J010v31n04_03 DO - 10.1300/J010v31n04_03 ID - Hartman2000 ER - TY - JOUR AU - Verhoof, E. AU - Maurice-Stam, H. AU - Heymans, H. AU - Grootenhuis, M. PY - 2012 DA - 2012// TI - Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability JO - Acta Paediatr VL - 101 UR - https://doi.org/10.1111/j.1651-2227.2011.02418.x DO - 10.1111/j.1651-2227.2011.02418.x ID - Verhoof2012 ER - TY - JOUR AU - Stam, H. AU - Grootenhuis, M. A. AU - Last, B. F. PY - 2005 DA - 2005// TI - The course of life of survivors of childhood cancer JO - Psycho Oncol VL - 14 UR - https://doi.org/10.1002/pon.839 DO - 10.1002/pon.839 ID - Stam2005 ER - TY - JOUR AU - Maslow, G. R. AU - Haydon, A. AU - McRee, A. L. AU - Ford, C. A. AU - Halpern, C. T. PY - 2011 DA - 2011// TI - Growing up with a chronic illness: social success, educational/vocational distress JO - J Adolesc Health VL - 49 UR - https://doi.org/10.1016/j.jadohealth.2010.12.001 DO - 10.1016/j.jadohealth.2010.12.001 ID - Maslow2011 ER - TY - JOUR AU - Calsbeek, H. AU - Rijken, M. AU - Bekkers, M. J. AU - Kerssens, J. J. AU - Dekker, J. AU - van Berge Henegouwen, G. P. PY - 2002 DA - 2002// TI - Social position of adolescents with chronic digestive disorders JO - Eur J Gastroenterol Hepatol VL - 14 UR - https://doi.org/10.1097/00042737-200205000-00012 DO - 10.1097/00042737-200205000-00012 ID - Calsbeek2002 ER - TY - JOUR AU - Lindsay, S. PY - 2011 DA - 2011// TI - Employment status and work characteristics among adolescents with disabilities JO - Disabil Rehabil VL - 33 UR - https://doi.org/10.3109/09638288.2010.514018 DO - 10.3109/09638288.2010.514018 ID - Lindsay2011 ER - TY - JOUR AU - Blomquist, K. B. PY - 2006 DA - 2006// TI - Health, education, work, and independence of young adults with disabilities JO - Orthop Nurs VL - 25 UR - https://doi.org/10.1097/00006416-200605000-00005 DO - 10.1097/00006416-200605000-00005 ID - Blomquist2006 ER - TY - JOUR AU - Gurney, J. G. AU - Krull, K. R. AU - Kadan-Lottick, N. AU - Nicholson, H. S. AU - Nathan, P. C. AU - Zebrack, B. AU - Tersak, J. M. AU - Ness, K. K. PY - 2009 DA - 2009// TI - Social outcomes in the childhood cancer survivor study cohort JO - J Clin Oncol VL - 27 UR - https://doi.org/10.1200/JCO.2008.21.1458 DO - 10.1200/JCO.2008.21.1458 ID - Gurney2009 ER - TY - JOUR AU - Boot, C. R. AU - Heijmans, M. AU - van der Gulden, J. W. AU - Rijken, M. PY - 2008 DA - 2008// TI - The role of illness perceptions in labor participation of the chronically ill JO - Int Arch Occup Environ Health VL - 82 UR - https://doi.org/10.1007/s00420-007-0298-5 DO - 10.1007/s00420-007-0298-5 ID - Boot2008 ER - TY - JOUR AU - Hoving, J. L. AU - van der Meer, M. AU - Volkova, A. Y. AU - Frings-Dresen, M. H. PY - 2010 DA - 2010// TI - Illness perceptions and work participation: a systematic review JO - Int Arch Occup Environ Health VL - 83 UR - https://doi.org/10.1007/s00420-010-0506-6 DO - 10.1007/s00420-010-0506-6 ID - Hoving2010 ER - TY - JOUR AU - Evers, A. W. AU - Kraaimaat, F. W. AU - van Lankveld, W. AU - Jongen, P. J. AU - Jacobs, J. W. AU - Bijlsma, J. W. PY - 2001 DA - 2001// TI - Beyond unfavorable thinking: the illness cognition questionnaire for chronic diseases JO - J Consult Clin Psychol VL - 69 UR - https://doi.org/10.1037/0022-006X.69.6.1026 DO - 10.1037/0022-006X.69.6.1026 ID - Evers2001 ER - TY - JOUR AU - Evers, A. W. AU - Lu, Y. AU - Duller, P. AU - van der Valk, P. G. AU - Kraaimaat, F. W. AU - van de Kerkhof, P. C. PY - 2005 DA - 2005// TI - Common burden of chronic skin diseases? Contributors to psychological distress in adults with psoriasis and atopic dermatitis JO - Br J Dermatol VL - 152 UR - https://doi.org/10.1111/j.1365-2133.2005.06565.x DO - 10.1111/j.1365-2133.2005.06565.x ID - Evers2005 ER - TY - JOUR AU - Vriezekolk, J. AU - Eijsbouts, A. AU - Evers, A. AU - Stenger, A. AU - Van Den Hoogen, F. AU - van Lankveld, W. PY - 2010 DA - 2010// TI - Poor psychological health status among patients with inflammatory rheumatic diseases and osteoarthritis in multidisciplinary rehabilitation: need for a routine psychological assessment JO - Disabil Rehabil VL - 32 UR - https://doi.org/10.3109/09638280903323250 DO - 10.3109/09638280903323250 ID - Vriezekolk2010 ER - TY - JOUR AU - Voerman, G. E. AU - Erren-Wolters, C. V. AU - Fleuren, J. F. AU - Hermens, H. J. AU - Geurts, A. C. PY - 2010 DA - 2010// TI - Perceived spasticity in chronic spinal cord injured patients: associations with psychological factors JO - Disabil Rehabil VL - 32 UR - https://doi.org/10.3109/09638280903304490 DO - 10.3109/09638280903304490 ID - Voerman2010 ER - TY - JOUR AU - Lauwerier, E. AU - Crombez, G. AU - Van, D. S. AU - Goubert, L. AU - Vogelaers, D. AU - Evers, A. W. PY - 2010 DA - 2010// TI - The construct validity of the illness cognition questionnaire: the robustness of the three-factor structure across patients with chronic pain and chronic fatigue JO - Int J Behav Med VL - 17 UR - https://doi.org/10.1007/s12529-009-9059-z DO - 10.1007/s12529-009-9059-z ID - Lauwerier2010 ER - TY - JOUR AU - Aaronson, N. K. AU - Muller, M. AU - Cohen, P. D. AU - Essink-Bot, M. L. AU - Fekkes, M. AU - Sanderman, R. AU - Sprangers, M. A. AU - te Velde, A. AU - Verrips, E. PY - 1998 DA - 1998// TI - Translation, validation, and norming of the Dutch language version of the SF-36 health survey in community and chronic disease populations JO - J Clin Epidemiol VL - 51 UR - https://doi.org/10.1016/S0895-4356(98)00097-3 DO - 10.1016/S0895-4356(98)00097-3 ID - Aaronson1998 ER - TY - JOUR AU - van der Zee, K. I. AU - Sanderman, R. AU - Heyink, J. W. AU - de Haes, H. PY - 1996 DA - 1996// TI - Psychometric qualities of the RAND 36-Item Health Survey 1.0: a multidimensional measure of general health status JO - Int J Behav Med VL - 3 UR - https://doi.org/10.1207/s15327558ijbm0302_2 DO - 10.1207/s15327558ijbm0302_2 ID - van der Zee1996 ER - TY - JOUR AU - Ware, J. E. AU - Kosinski, M. PY - 2001 DA - 2001// TI - Interpreting SF-36 summary health measures: a response JO - Qual Life Res VL - 10 UR - https://doi.org/10.1023/A:1012588218728 DO - 10.1023/A:1012588218728 ID - Ware2001 ER - TY - JOUR AU - Stam, H. AU - Grootenhuis, M. A. AU - Caron, H. N. AU - Last, B. F. PY - 2006 DA - 2006// TI - Quality of life and current coping in young adult survivors of childhood cancer: positive expectations about the further course of the disease were correlated with better quality of life JO - Psychooncol VL - 15 UR - https://doi.org/10.1002/pon.920 DO - 10.1002/pon.920 ID - Stam2006 ER - TY - JOUR AU - Bjelland, I. AU - Dahl, A. A. AU - Haug, T. T. AU - Neckelmann, D. PY - 2002 DA - 2002// TI - The validity of the hospital anxiety and depression scale: an updated literature review JO - J Psychosom Res VL - 52 UR - https://doi.org/10.1016/S0022-3999(01)00296-3 DO - 10.1016/S0022-3999(01)00296-3 ID - Bjelland2002 ER - TY - JOUR AU - Spinhoven, P. AU - Ormel, J. AU - Sloekers, P. P. AU - Kempen, G. I. AU - Speckens, A. E. AU - Van Hemert, A. M. PY - 1997 DA - 1997// TI - A validation study of the Hospital Anxiety and Depression Scale (HADS) in different groups of Dutch subjects JO - Psychol Med VL - 27 UR - https://doi.org/10.1017/S0033291796004382 DO - 10.1017/S0033291796004382 ID - Spinhoven1997 ER - TY - JOUR AU - Hatzmann, J. AU - Maurice-Stam, H. AU - Heymans, H. S. AU - Grootenhuis, M. A. PY - 2009 DA - 2009// TI - A predictive model of health related quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system JO - Health Qual Life Outcomes VL - 7 UR - https://doi.org/10.1186/1477-7525-7-72 DO - 10.1186/1477-7525-7-72 ID - Hatzmann2009 ER - TY - BOOK AU - Cohen, J. PY - 1988 DA - 1988// TI - Statistical power analysis for the behavioral sciences PB - Academy Press CY - New York ID - Cohen1988 ER - TY - JOUR AU - Samwel, H. J. AU - Evers, A. W. AU - Crul, B. J. AU - Kraaimaat, F. W. PY - 2006 DA - 2006// TI - The role of helplessness, fear of pain, and passive pain-coping in chronic pain patients JO - Clin J Pain VL - 22 UR - https://doi.org/10.1097/01.ajp.0000173019.72365.f5 DO - 10.1097/01.ajp.0000173019.72365.f5 ID - Samwel2006 ER - TY - JOUR AU - Currier, J. M. AU - Hermes, S. AU - Phipps, S. PY - 2009 DA - 2009// TI - Brief report: children’s response to serious illness: perceptions of benefit and burden in a pediatric cancer population JO - J Pediatr Psychol VL - 34 UR - https://doi.org/10.1093/jpepsy/jsp021 DO - 10.1093/jpepsy/jsp021 ID - Currier2009 ER - TY - JOUR AU - Maurice-Stam, H. AU - Broek, A. AU - Kolk, A. M. AU - Vrijmoet-Wiersma, J. M. AU - Meijer-van den Bergh, E. AU - van Dijk, E. M. AU - Phipps, S. AU - Grootenhuis, M. A. PY - 2011 DA - 2011// TI - Measuring perceived benefit and disease-related burden in young cancer survivors: validation of the Benefit and Burden Scale for Children (BBSC) in The Netherlands JO - Support Care Cancer VL - 19 UR - https://doi.org/10.1007/s00520-011-1206-9 DO - 10.1007/s00520-011-1206-9 ID - Maurice-Stam2011 ER - TY - JOUR AU - Evers, A. W. AU - Kraaimaat, F. W. AU - Geenen, R. AU - Jacobs, J. W. AU - Bijlsma, J. W. PY - 2002 DA - 2002// TI - Longterm predictors of anxiety and depressed mood in early rheumatoid arthritis: a 3 and 5 year followup JO - J Rheumatol VL - 29 ID - Evers2002 ER - TY - JOUR AU - van Koulil, S. AU - van Lankveld, W. AU - Kraaimaat, F. W. AU - van Riel, P. L. AU - Evers, A. W. PY - 2010 DA - 2010// TI - Risk factors for longer term psychological distress in well-functioning fibromyalgia patients: a prospective study into prognostic factors JO - Patient Educ Couns VL - 80 UR - https://doi.org/10.1016/j.pec.2009.08.001 DO - 10.1016/j.pec.2009.08.001 ID - van Koulil2010 ER - TY - JOUR AU - Kroft, E. B. AU - de Jong, E. M. AU - Evers, A. W. PY - 2009 DA - 2009// TI - Psychological distress in patients with morphea and eosinophilic fasciitis JO - Arch Dermatol VL - 145 UR - https://doi.org/10.1001/archdermatol.2009.202 DO - 10.1001/archdermatol.2009.202 ID - Kroft2009 ER - TY - BOOK AU - Borghouts-van de Pas, I. W. AU - Pennings, F. J. PY - 2008 DA - 2008// TI - Arbeidsparticipatie van jonggehandicapten: een onderzoek naar Europese systemen en praktijken [Workforce participation of young disabled: a study of European systems and practices] PB - OSA - Institute for Labour Studies CY - Tilburg ID - Borghouts-van de Pas2008 ER - TY - BOOK AU - Snel, N. AU - van Wensveen, D. PY - 2011 DA - 2011// TI - Het eerste jaar nieuwe Wajong: kwantitatief onderzoek onder Wajongers ten behoeve van de monitor nieuwe Wajong [The first year new Wajong: quantitative survey in Wajongers for the new Wajong monitor] PB - TNS NIPO CY - Amsterdam ID - Snel2011 ER - TY - BOOK PY - 2008 DA - 2008// TI - Werk moet lonen: onderzoek onder Wajongers naar de financiele baten van werk [Work should pay: research in Wajongers for financial benefits of working] PB - Regioplan Beleidsonderzoek CY - Amsterdam ID - ref37 ER - TY - JOUR AU - Sinnema, G. PY - 1992 DA - 1992// TI - Youths with chronic illness and disability on their way to social and economic participation: a health-care perspective JO - J Adolesc Health VL - 13 UR - https://doi.org/10.1016/1054-139X(92)90030-F DO - 10.1016/1054-139X(92)90030-F ID - Sinnema1992 ER - TY - JOUR AU - van Staa, A. L. AU - Jedeloo, S. AU - van Meeteren, J. AU - Latour, J. M. PY - 2011 DA - 2011// TI - Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers JO - Child Care Health Dev VL - 6 UR - https://doi.org/10.1111/j.1365-2214.2011.01261.x DO - 10.1111/j.1365-2214.2011.01261.x ID - van Staa2011 ER - TY - JOUR AU - Haverman, L. AU - Engelen, V. AU - van Rossum, M. A. AU - Heymans, H. S. AU - Grootenhuis, M. A. PY - 2011 DA - 2011// TI - Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application JO - BMC Pediatr VL - 11 UR - https://doi.org/10.1186/1471-2431-11-3 DO - 10.1186/1471-2431-11-3 ID - Haverman2011 ER - TY - JOUR AU - Engelen, V. AU - Detmar, S. AU - Koopman, H. AU - Maurice-Stam, H. AU - Caron, H. AU - Hoogerbrugge, P. AU - Egeler, R. M. AU - Kaspers, G. AU - Grootenhuis, M. PY - 2012 DA - 2012// TI - Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: is it effective? JO - Pediatr Blood Canc VL - 58 UR - https://doi.org/10.1002/pbc.23158 DO - 10.1002/pbc.23158 ID - Engelen2012 ER - TY - JOUR AU - Haverman, L. AU - van Rossum, M. A. AU - van Veenendaal, M. AU - van den Berg, J. M. AU - Dolman, K. M. AU - Swart, J. AU - Kuijpers, T. W. AU - Grootenhuis, M. A. PY - 2013 DA - 2013// TI - Effectiveness of a web-based application to monitor health-related quality of life JO - Pediatrics VL - 131 UR - https://doi.org/10.1542/peds.2012-0958 DO - 10.1542/peds.2012-0958 ID - Haverman2013 ER -