Table 2 Participant demographics
|  | T1 (n = 135) | T3 (n = 82) | SSI (n = 17) |
|---|---|---|---|
Participant type, n (%) | Â | Â | Â |
 Mother | 66 (48.9) | 45 (54.9) | 10 (58.8) |
 Father | 23 (17.0) | 12 (14.6) | 1 (5.9) |
 Patient | 37 (27.4) | 21 (25.6) | 6 (35.3) |
 Sibling | 7 (5.2) | 4 (4.9) | – |
 Legal guardian | 1 (0.7) | – | – |
 Extended family | 1 (0.7) | – | – |
Age range, n (%) | Â | Â | Â |
 8 to 12 years | 13 (9.6) | 6 (7.3) | 2 (11.8) |
 13 to 17 years | 30 (22.2) | 19 (23.2) | 4 (23.5) |
 18 + years | 92 (68.1) | 57 (69.5) | 11 (64.7) |
Sex, n (%) | Â | Â | Â |
 Female | 97 (71.9) | 61 (74.4) | 14 (82.4) |
 Male | 38 (28.1) | 21 (25.6) | 3 (17.6) |
Patient primary diagnosis, n (%) | Â | Â | Â |
 Epilepsy/seizure | 39 (28.9) | 16 (19.5) | 4 (23.5) |
 Headache disorders | 11 (8.1) | 5 (6.1) | 2 (11.8) |
 Stroke | 7 (5.2) | 6 (7.3) | – |
 Adolescent idiopathic scoliosis | 6 (4.4) | 5 (6.1) | 4 (23.5) |
 Vision disorders | 5 (3.7) | 3 (3.7) | 1 (5.9) |
 Multiple sclerosis | 4 (3.0) | 4 (4.9) | 2 (11.8) |
 Global developmental delay | 3 (2.2) | 1 (1.2) | – |
 Brain injury | 2 (1.5) | 2 (2.4) | – |
 Other | 13 (9.6) | 10 (12.2) | 1 (5.9) |
 No diagnosis listed | 45 (33.3) | 30 (36.6) | 3 (17.6) |
Date of primary diagnosis, n (%) | Â | Â | Â |
 2016–2017 | 5 (3.7) | 4 (4.8) | 4 (23.6) |
 2018–2019 | 77 (57.0) | 47 (57.2) | 10 (58.8) |
 Not listed | 53 (39.3) | 31 (37.8) | 3 (17.6) |
Past NSWSSC visits, n (%) | Â | Â | Â |
 0 | 119 (88.1) | 74 (90.2) | 16 (94.1) |
 1–2 | 14 (10.4) | 6 (7.3) | 1 (5.9) |
 3 +  | 2 (1.5) | 2 (2.4) | – |